We congratulate the CESAR-project “Development of outcome measure” to a publication earlier this year.
A scoping review and mapping exercise comparing the content of patient-reported
outcome measures (PROMs) across heart disease-specific scales, Algurén et al, Journal of Patient-Reported Outcomes, 2020.
The project aims to develop a comprehensive generic PROM-instrument for patients with heart diseases, to be used in clinic and reserach to evaluate effects of person-centered care and other interventions. In this scoping review the authors identified 34 PROMs for various heart diseases and have mapped the items of these to WHO’s International Classification of Functioning, Disability and Health (ICF). Based on the findings the CESAR-project suggest that 10 Body functions, 13 aspects of Activities & Participation, and 2 aspects of Environmental factors should be included in a generic PROM for patients with different types of heart diseases in order to capture patients’ experiences of their health status from a bio-psycho-social perspective.