28 different PROM instruments have been identified  and more than 15 have been linked to the ICF. The group is now analyzing the differences and similarities between instruments in terms om symptom burden. The individual items are also arranged in order of disease-specificness or generality.

The next step is to do the same procedure with symptoms that are described in qualitative papers, and later on a Delphi evaluation or a focus group will be conducted in the Cesar Network.