On the 29th of January 2021 Frida Andréasson defended her thesis with the title “Doing informal care – Identity, couplehood, social health and information and communication technologies in older people´s everyday lives”. The opponent Anna Dunér and the examination committee was attending online, but that didn´t hinder interesting and fruitful discussions. The thesis can be found here: http://www.diva-portal.org/smash/record.jsf?pid=diva2%3A1515352&dswid=4030
In Kalmar next week – and on Zoom, there will be a conference on pharmaceutical care, which is arranged by two Cesar-members. The plenary session will start with two presentations relevant to all professionals who meet patients who use mediicnes – and who want to practice person-centered care.
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13.30-14.00 The medication experience – what it is and why it is important Lisa Hillman, registered pharmacist and PhD-student, University of Minnesota Aims to bring the pharmacist and other health care professionals to a deeper understanding of the medication experience as a human experience and the language to access and incorporate it into care that optimizes medication use, health, and well-being of patients.
14.15-15.00 The role of medicines information in long-term medication courses – impact on patient safety and quality Marianne Møller, Registered pharamcist and, Farm Dr, Syddansk Universitet Patients using long-term medication for chronic conditions need medicines information for making decisions about medicine-taking in complex treatments with limited contact to health professionals. On the basis of literature and results from three analyses, I will discuss patients’ use of medicines information for managing long-term medication, including their own contributions to quality and resilience in long-term treatment processes.
With the new ESC Heart failure guidelines in place, there is a lot to discuss on patient education, heart failure management programs, palliative care and telemonitoring. Professor Tiny Jaarsma was recently invited to give a presentation for the Spanish cardiac Society on “Whats new in nursing and the organisation for heart failure patients”.
This spring Cesar member Naoko Kato became docent in Nursing Science, congratulations! Naokos main research area is self-care among patients with heart failure and together with outher Cesars she recently published a review about the methodological quality of studies who use the European Heart Failure Self-care Behaviour Scale (EHFScBS).
Last week we had our second Cesar Network on Zoom. We are now up and running for Zoom-meetings, but we do miss the opportunities that social and physical meetings bring and we decided to plan for one digital and one real meeting per semester. We will also add some extra “plus-menu” to the physical meetings, with a morning writing-session or other work-shop. So that all who travels really get value from their travelled distance and time.
In the recent issue of Lancet Psychiatry two Cesars are among the authors of a review and meta-analysis that can optimise the future internet cognitive behavioural therapy (iCBT)for depression. Depression is a common risk factor and co-morbidity among patients with heart disease, and heart patients with depression have higher morbidity and mortality than non-depressed peers. The findings of this research can help personalise and make iCBT programmes more effective and efficient.
I write this my self, but even so – Cesar Network congratulates me to a nice defence of the thesis Pharmaceutical care in coronary heart disease on April 16th.
It was an all digital event and I am happy that more than 100 viewers could join as I had this very interesting discussion with Professor Carmel Hughes from Queens University Belfast. The thesis can be found here.
The early months of 2020 flew away quickly and we now re-cap some of the most exciting news.
In February three Cesars received great news as the Kamprad Family Foundation for Entrepreneurship, Research & Charity announced their grant decisions. Our congratulations to you all!
Anna Strömberg received grants for her project to develop an internet-based support for informal caregivers in heart failure, which will use the platform “1177” which is available in all swedish healthcare regions.
Naoko Perkiö Kato received grants for her project to develop homebased selfcare for patients with heart failure.
Tiny Jaarsma received grants to continue the development and use of exergaming in patients with heart disease.
The project aims to develop a comprehensive generic PROM-instrument for patients with heart diseases, to be used in clinic and reserach to evaluate effects of person-centered care and other interventions. In this scoping review the authors identified 34 PROMs for various heart diseases and have mapped the items of these to WHO’s International Classification of Functioning, Disability and Health (ICF). Based on the findings the CESAR-project suggest that 10 Body functions, 13 aspects of Activities & Participation, and 2 aspects of Environmental factors should be included in a generic PROM for patients with different types of heart diseases in order to capture patients’ experiences of their health status from a bio-psycho-social perspective.