Maria Bäck received a VR Grant for her study “Fysisk träning via videolänk inom hjärtrehabilitering”, good luck with the study!
This might be an interesting publication for a lot of researchers in our field, published by a large group of researchers, including some CESAR members.
The instrument measuring self- care and it is a generic instrument named, Development and initial testing of the self-care of chronic illness inventory
B Riegel presenting this work at the 2018 Canberra Health Annual Research Meeting (CHARM). In Canberra in August 2018 and won the SYNERGY Award for the Best Nursing Research Oral Presentation. (see twitter: https://twitter.com/DrJaarsma/status/1025290685170114561)
Martje is a Heart Failure nurse in the Netherlands and PhD who is working since several years as a post-doc at the Department of Social and Welfare studies at the University of Linköping.
Martje received her PhD in the Netherlands at the Department of Cardiology at the University Medical Centre Groningen in 2007 in the COACH study with her thesis ‘Compliance in heart failure patients; who cares?’ Since several years she is working as a post-doc in Linköping together with researchers on thirst in HF patients, the Wii study and the TALK-HF study on discussing prognosis in HF patients. Recently, a grant from FORTE was received for her to work more intensively on the TALK-HF project. She will help to test a new developed Swedish communication tool about discussing the disease trajectory with HF patients among patients and health care providers in the Netherlands. She will also be involved in a survey among cardiologists in Sweden about discussing prognosis with HF patients. This survey was recently conducted in the Netherlands and presented at ESC Heart Failure 2018 in Vienna. Finally she will be involved in international research collaboration for developing a communication course for professionals about discussing prognosis and disease trajectory with HF patients.
Martje will work together in the TALK-HF project with Tiny Jaarsma, Anna Strömberg, Jan Mårtensson and Lisa Hjelmfors and also is involved in a project addressing thirst. Furthermore, she is an advisor in the HF-Wii project .
When And How Do We Discuss Prognosis And End-of-life With Patients With Heart Failure? A topic that is lately much discussed on cardiac congresses is the discussion of prognosis and end-of-life with patients with heart failure. Who is responsible to discuss these difficult topics? When should these topics be discussed and how do patients like to discuss this in their heart failure care?
Communication with patients with heart failure should always be tailored, this is strengthened by the findings in her research that patients have different preferences in discussing prognosis and end-of-life.
But a lot of research is yet to come. We have to find good ways to make it easier to discuss end-of-life and prognoses for both nurses and patients. End-of-life simulations could provide successful and appreciated learning situations for nursing students, teaching them communication skills in challenging situation. A prompt list could help patients to initiate discussion. Research is also needed on how to include care-givers in discussing end-of-life and prognosis and look at their perspectives on these discussions.
Tiny Jaarsma and Anna Strömberg went to Rome on the 14 and 15 May to share knowledge and experience on using the Middle Range Theory of Self-care in Chronic Illness during a conference organized by the Nursing center of excellence in Rome. A lot of researchers and students from Tor Vergata University in Rome presented their impressive work using this theory in patients with cardiac disease but also other chronic disease such as COPD and diabetes. It seems that the theory is very valuable to structure research and use in patient care and instrument development.
Read a new article in Omvårdnadsmagasinet about Johan Lundgrens research at https://www.swenurse.se/omvardnadsmagasinet/tidigare-nr/nr-02-argang-2018/internetstod-mot-depression-vid-hjartsvikt/
Christina Andrea presented a poster about nutrition in HF patients and Lisa Hjelmfors, Anna Strömberg and Tiny Jaarsma presented a poster about palliative care.
During the whole conferens Leonie Klompstra posted Early career blogs for the AHA, read them here;
Östgöta gilles PhD scholarship goes to Lisa Hjelmforsfor her research about communication about heart failure prognosis and end of life care. Read more here.
The scholarship is awarded to a PhD student who performed a valuable individual work at one of the university’s faculties. Cesar Network congratulates Lisa for a well earned scholarship!
Tiny Jaarsma, believes that all people should play video games. It is especially important for heart failure patients who have difficulty getting out and exercising. An initial study in patients with heart failure have shown positive results.
Watch Tiny on TV- UR Samtiden – Tvärvetenskap i praktiken.