Category Archives: Uncategorized

Masters student visit


As a masters student from Utrecht University, the Netherlands, I am working on my master thesis. Being an ICU nurse, I encounter such a large proportion of my patients experiencing severe thirst. So when I had the opportunity to work with Tiny Jaarsma on measuring thirst I didn’t think twice ! In my graduation project I am now looking at the reliability and validity of the Thirst Distress Scale for patients with Heart Failure (TDS-HF) in a population of ICU patients. In March I have had the opportunity to come to Linköping and Norrköping to meet Tiny and others to work on my project. It has been a great experience to meet with researchers from LIU and Karolinska Institutet and share ideas. I have felt very welcome. Thanks to all of you !

Marleen Flim

New instrument for meassuring self-care avaliable

This might be an interesting publication for a lot of researchers in our field, published by a large group of researchers, including some CESAR members.

The instrument measuring self- care and it is a generic instrument named, Development and initial testing of the self-care of chronic illness inventory

B Riegel presenting this work at the 2018 Canberra Health Annual Research Meeting (CHARM). In Canberra in August 2018 and won the SYNERGY Award for the Best Nursing Research Oral Presentation. (see twitter:

Presentation of Martje van der Wal

Martje van der Wal-1020760

Martje is a Heart Failure nurse in the Netherlands and PhD who is working since several   years as a post-doc at the Department of Social and Welfare studies at the University of Linköping.

Martje received her PhD in the Netherlands at the Department of Cardiology at the University Medical Centre Groningen in 2007 in the COACH study with her thesis ‘Compliance in heart failure patients; who cares?’ Since several years she is working as a post-doc in Linköping together with researchers on thirst in HF patients, the Wii study and the TALK-HF study on discussing prognosis in HF patients. Recently, a grant from FORTE was received for her to work more intensively on the TALK-HF project. She will help to test a new developed Swedish communication tool about discussing the disease trajectory with HF patients among patients and health care providers in the Netherlands. She will also be involved in a survey among cardiologists in Sweden about discussing prognosis with HF patients. This survey was recently conducted in the Netherlands and presented at ESC Heart Failure 2018 in Vienna. Finally she will be involved in international research collaboration for developing a communication course for professionals about discussing prognosis and disease trajectory with HF patients.

Martje will work together in the TALK-HF project with Tiny Jaarsma, Anna Strömberg, Jan Mårtensson and Lisa Hjelmfors and also is involved in a project addressing thirst. Furthermore, she is an advisor in the HF-Wii project .

Congratulations Dr Hjelmfors


When And How Do We Discuss Prognosis And End-of-life With Patients With Heart Failure? A topic that is lately much discussed on cardiac congresses is the discussion of prognosis and end-of-life with patients with heart failure. Who is responsible to discuss these difficult topics? When should these topics be discussed and how do patients like to discuss this in their heart failure care?

In a recent doctoral thesis, Lisa Hjelmfors explored the prevalence and practice of nurses discussing prognosis and end-of-life care with patients with heart failure and the nurses’ perspectives regarding discussing prognosis and end-of-life care.
Her research showed that most nurses discussed prognosis and end-of-life care with a patient with heart failure at some point in their clinical practice. Although they found that they have a role in these discussions, they found that the main responsibility for this discussion is with the physician. Together with sexuality, discussing prognosis and end-of-life are the least frequently discussed topics in heart failure clinics.
Lisa Hjelmfors points out that end-of life care should be included as a part of the daily routine at heart failure clinics and nurses should be encouraged to take more responsibility for discussing prognosis and end-of-life with patients and their care-givers.

Communication with patients with heart failure should always be tailored, this is strengthened by the findings in her research that patients have different preferences in discussing prognosis and end-of-life.

But a lot of research is yet to come. We have to find good ways to make it easier to discuss end-of-life and prognoses for both nurses and patients. End-of-life simulations could provide successful and appreciated learning situations for nursing students, teaching them communication skills in challenging situation.  A prompt list could help patients to initiate discussion. Research is also needed on how to include care-givers in discussing end-of-life and prognosis and look at their perspectives on these discussions.

Posted by Leonie Klompstra on May 24, 2018 11:09 AM America/Chicago

Self-care day in Rome 2018


sc rome

Tiny Jaarsma and Anna Strömberg went to Rome on the 14 and 15 May to share knowledge and experience on using the Middle Range Theory of Self-care in Chronic Illness during a conference organized by the Nursing center of excellence in Rome. A lot of researchers and students from Tor Vergata University in Rome presented their impressive work using this theory in patients with cardiac disease but also other chronic disease such as COPD and diabetes. It seems that the theory is very valuable to structure research and use in patient care and instrument development.

Cesars at AHA

This year a group of Cesar members attended and presented at American Heart.

Christina Andrea presented a poster about nutrition in HF patients and Lisa Hjelmfors, Anna Strömberg and Tiny Jaarsma presented a poster about palliative care.












Tiny and Anna also gave several speeches, as well as Jeroen Hendriks.JH









JagMaria Liljeroos presented in the oral abstract session about the feasibility of a ehealth tool prescribed to patients with HF.




During the whole conferens Leonie Klompstra posted Early career blogs for the AHA, read them here;

Nursing poster sessions

Early career Blog