Last week we had our second Cesar Network on Zoom. We are now up and running for Zoom-meetings, but we do miss the opportunities that social and physical meetings bring and we decided to plan for one digital and one real meeting per semester. We will also add some extra “plus-menu” to the physical meetings, with a morning writing-session or other work-shop. So that all who travels really get value from their travelled distance and time.
In the recent issue of Lancet Psychiatry two Cesars are among the authors of a review and meta-analysis that can optimise the future internet cognitive behavioural therapy (iCBT)for depression. Depression is a common risk factor and co-morbidity among patients with heart disease, and heart patients with depression have higher morbidity and mortality than non-depressed peers. The findings of this research can help personalise and make iCBT programmes more effective and efficient.
I write this my self, but even so – Cesar Network congratulates me to a nice defence of the thesis Pharmaceutical care in coronary heart disease on April 16th.
It was an all digital event and I am happy that more than 100 viewers could join as I had this very interesting discussion with Professor Carmel Hughes from Queens University Belfast. The thesis can be found here.
The early months of 2020 flew away quickly and we now re-cap some of the most exciting news.
In February three Cesars received great news as the Kamprad Family Foundation for Entrepreneurship, Research & Charity announced their grant decisions. Our congratulations to you all!
Anna Strömberg received grants for her project to develop an internet-based support for informal caregivers in heart failure, which will use the platform “1177” which is available in all swedish healthcare regions.
Naoko Perkiö Kato received grants for her project to develop homebased selfcare for patients with heart failure.
Tiny Jaarsma received grants to continue the development and use of exergaming in patients with heart disease.
We congratulate the CESAR-project “Development of outcome measure” to a publication earlier this year.
A scoping review and mapping exercise comparing the content of patient-reported
outcome measures (PROMs) across heart disease-specific scales, Algurén et al, Journal of Patient-Reported Outcomes, 2020.
The project aims to develop a comprehensive generic PROM-instrument for patients with heart diseases, to be used in clinic and reserach to evaluate effects of person-centered care and other interventions. In this scoping review the authors identified 34 PROMs for various heart diseases and have mapped the items of these to WHO’s International Classification of Functioning, Disability and Health (ICF). Based on the findings the CESAR-project suggest that 10 Body functions, 13 aspects of Activities & Participation, and 2 aspects of Environmental factors should be included in a generic PROM for patients with different types of heart diseases in order to capture patients’ experiences of their health status from a bio-psycho-social perspective.
Cesar network is very proud to announce that the Florence Nightingale Lecture in Nurse-Led Research at ESC Congress 2020 was given by Tiny Jaarsma. The presentation “Modern technology to improve patient care” can be found at the ESC website.
A new manuscript; “Changes in Appetite During the Heart Failure Trajectory and Association With Fatigue, Depressive Symptoms, and Quality of Life” was recently published by Christina Andreae, Martje van der Wal, Dirk van Veldhuisen, Bei Yang, Anna Strömberg and Tiny Jaarsma. Congratulations from the Cesar team!
Also an editorial in European Journal of Cardiovaskular nursing called “Let the games begin: Serious games in prevention and rehabilitation to improve outcomes in patients with cardiovascular disease” was posted by Brynja Ingadottir, Tiny Jaarsma, Leonie Klompstra, Jan Aidemark, Linda Askenäs, Yotam Bahat, Oran Ben Gal, Aseel Berglund, Erik Berglund, Christoph Höchsmann, Meir Plotnik, Jaap CA Trappenburg, Arno Schmidt-Trucksäss and Anna Strömberg.
Leonie gave a presentation in the sessions “Improving Care for the Most Vulnerable Groups of Cardiovascular Patients” at ESC Congress 2020 – the Digital Experience on. The title of the presentation was; Exercise motivation in patients with heart failure.
Co-authors were Tiny Jaarsma, Anna Strömberg & Martje van der Wal. Analyses on the baseline data in the HF-Wii study with the purpose to describe motivations of HF patients to exercise and describe variables that are related to their exercise motivation.
For receiving the Astrid Janzon grant, very well deserved!
Read a new important editorial published in EJCN here https://journals.sagepub.com/doi/full/10.1177/1474515120921027