One is usually very revealed and happy ones the manuscript is accepted – and published, then we move on to other projects on our lists. But what happens to our published work is also worth to celebrate, ones we get that feed-back. EJCN now in a HeartBeat article celebrates the papers who received most attention (altmetric score) and most downloads during 2020. And Cesars were attributable in 1 of 4 with best altmetric score, and in 4 of the 5 most dowloaded articles.
Frida Andréasson and the co-authors Tina Mattsson (Lund University) and Elizabeth Hanson (Linnaeus University) recently published an article based on ethnographic research. Data was collected through observations and interviews with older couples in an informal care situation. The article shows how the process of becoming a carer/care recipient creates a new life situation for couples. The findings reveal changes that happen to family roles, the social isolation that can appear and the strategies used to enable couples to find balance and a sense of autonomy in their lives as a family.
Between the 4th and 8th of October Carer´s week is taking place in Eskilstuna, Sweden. The focus is on informal care and carers, and different activities are being arranged targeting carers and the public.
On the 5th of October Cesar member Frida Andréasson presented about a research project in which an online support programme for carers of people with heart failure has been developed. Frida talked about the development of the programme and the ongoing RCT study to measure effects. She was also able to show the now finished online support programme and it´s content for the audience. Several Cesar members are involved in the research project in different ways.
On the 29th of January 2021 Frida Andréasson defended her thesis with the title “Doing informal care – Identity, couplehood, social health and information and communication technologies in older people´s everyday lives”. The opponent Anna Dunér and the examination committee was attending online, but that didn´t hinder interesting and fruitful discussions. The thesis can be found here: http://www.diva-portal.org/smash/record.jsf?pid=diva2%3A1515352&dswid=4030
Congratulations Dr Andréasson, from all Cesars!
In Kalmar next week – and on Zoom, there will be a conference on pharmaceutical care, which is arranged by two Cesar-members. The plenary session will start with two presentations relevant to all professionals who meet patients who use mediicnes – and who want to practice person-centered care.
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13.30-14.00 The medication experience – what it is and why it is important
Lisa Hillman, registered pharmacist and PhD-student, University of Minnesota
Aims to bring the pharmacist and other health care professionals to a deeper understanding of the medication experience as a human experience and the language to access and incorporate it into care that optimizes medication use, health, and well-being of patients.
14.15-15.00 The role of medicines information in long-term medication courses – impact on patient safety and quality
Marianne Møller, Registered pharamcist and, Farm Dr, Syddansk Universitet Patients using long-term medication for chronic conditions need medicines information for making decisions about medicine-taking in complex treatments with limited contact to health professionals. On the basis of literature and results from three analyses, I will discuss patients’ use of medicines information for managing long-term medication, including their own contributions to quality and resilience in long-term treatment processes.
With the new ESC Heart failure guidelines in place, there is a lot to discuss on patient education, heart failure management programs, palliative care and telemonitoring. Professor Tiny Jaarsma was recently invited to give a presentation for the Spanish cardiac Society on “Whats new in nursing and the organisation for heart failure patients”.
Last week Maria Liljeroos got a nice surprise as her article from 2020 was awarded as Top downloaded on European Journal of Cardiovascular Nursing.
This spring Cesar member Naoko Kato became docent in Nursing Science, congratulations! Naokos main research area is self-care among patients with heart failure and together with outher Cesars she recently published a review about the methodological quality of studies who use the European Heart Failure Self-care Behaviour Scale (EHFScBS).
Last week we had our second Cesar Network on Zoom. We are now up and running for Zoom-meetings, but we do miss the opportunities that social and physical meetings bring and we decided to plan for one digital and one real meeting per semester. We will also add some extra “plus-menu” to the physical meetings, with a morning writing-session or other work-shop. So that all who travels really get value from their travelled distance and time.
In the recent issue of Lancet Psychiatry two Cesars are among the authors of a review and meta-analysis that can optimise the future internet cognitive behavioural therapy (iCBT)for depression. Depression is a common risk factor and co-morbidity among patients with heart disease, and heart patients with depression have higher morbidity and mortality than non-depressed peers. The findings of this research can help personalise and make iCBT programmes more effective and efficient.