Category Archives: News from Cesar Members

ACNAP webinar; Clinical Cases on Heart Failure

This week Anna Strömberg, Tiny Jaarsma and Ekaterini Lambrinou held a great webinar arranged by ACNAP.

The learning objectives were;

  • Develop and/or test clinical skills on heart Failure clinical cases
  • Develop and /or test knowledge and clinical skills in assessing, diagnosing and managing cases in heart failure
  • Present two clinical cases on acute decompensated heart failure and on the management of chronic heart failure
  • Learn useful and evidence-based practical information on the care of heart failure patients from an acute event to the management of chronic heart failure
  • Learn how to develop evidence-based algorithms or pathways for the care of patients with heart failure

 

 

 

American Heart Congress – Chicago 10th-12th November 2018

The AHA congress that was compressed to three scientific sessions days were held in the windy city of Chicago. AHA is a great congress where everyone interested in cardiovascular research can find once home. McCormick place is one of the largest convention center in north US and a time schedule was a good way to keep on track of the 4000 abstracts and 800 sessions that was presented from more than 100 countries!

Many interesting presentations include mindfulness and yoga for patients with atrial fibrillation; nightmares and insomnia in CVD; C vitamin intake in heart failure; depression in ICD recipients and family care givers and frailty in AMI were held. CESAR member Prof Anna Strömberg presented the development of different health techniques for example new tools in monitoring symptoms in patients with heart failure.  Photo: Maria Liljeroos.

 

Christina Andreae, PhD talked about physical activity and appetite in heart failure. Patients who are more physical active have better appetite both at short and long-term follow-up and therefore health care professionals should recognize physical activity and appetite jointly as physical activity might improve appetite and poor nutrition. Photo: Anna Strömberg.

 

In a MAIN event, Janet E Fulton talked about physical activity as the most important component in maintaining CVD health. In the same session, prof Rusell Pate presented that individuals knowledge and skills are key to achieve physical activity goals, he also stressed that local laws and regulations, relations between organizations, social institutions, families, friends and social network are of importance to achieve global physical activity goals.    

 

 

 

 

 

Every steps counts! Walking 2000 more steps per day associate with 8% lower risk for having adverse patient outcomes! Presented by William E Kraus, Durham, NC.

 

 

Wendy Dusenbury presented that sexual dysfunction in stroke is common and affect both men and women. Health care providers should open up for questions about sexual dysfunction in stroke rehabilitation programs. Interventions targeting both patient and partner are needed.

 

 

 

 

CESAR member prof Tiny Jaarsma moderated an interesting session title “Challenging issues and emerging therapies in the management of sexual dysfunction after CV events”. Photo: Maria Liljeroos

 

 

Even though the first study of sodium restrictions was published 1941 there is still hot ongoing discussions on how sodium restrictions affect patients with heart failure.

This was a full packed session, very enjoyable panel discussion of pros and cons on sodium restrictions in heart failure.   

 

 

 

 

 

Nice art from Poland by Magdalena Abakanowicz 2003, Chicago 13 Nov 2018


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Greetings from a nice windy City Chicago!

Christina Andreae

 

 

 

 

 

 

 

 

 

Cesar congratulats the teleyoga group to the Forte grant!

CESAR medlemmar har fått ett anslag från FORTE 3.9 miljoner för forskning om effekter av teleyoga på fysisk funktionsförmåga, hälsorelaterad livskvalitet, psykiskt välbefinnande, biomarkörer, sömn och kognition hos personer med långvarig sjukdom. Huvudsökande var Anna Strömberg och medsökande var CESAR medlemmarna Tiny Jaarsma, Ingela Thylén, Leonie Klompstra, och Peter Johansson samt kardiolog Urban Alehagen, hälsoekonom Jenny Alwin och Lottie Orvelius omvårdnadsforskare inom intensivvård. Projektet genomförs på universitetssjukhuset i Linköping, Vrinnevisjukhuset i Norrköping och Länssjukhuset Ryhov i Jönköping.

 Sammanfattning av ansökan: Många äldre personer med långvarig sjukdom är fysiskt inaktiva och har svårt att lämna hemmet för att delta i rehabilitering. Vår hypotes är att teleyoga i hemmet med en yogainstruktör och andra deltagare i grupp via weblänk och instruktioner hur man dagligen själv gör medicinsk yoga med hjälp av en app kan vara en metod för att öka psykisk och fysisk livskvalitet, den fysiska funktionen och förmågan att klara av dagliga aktiviteter.

Medicinsk yoga är en form av Kundaliniyoga med enkla rörelser, andningsövningar och meditation. Yoga har visat effekt på livskvalitetet, men tidigare studier har endast inkluderat små selekterade urval. För äldre personer med långvarig sjukdom kan det vara svårt att delta i vanliga yogaklasser. Vi har utvecklat en teleyoga intervention och vill nu utvärdera effekterna med avseende på livskvalitet, fysisk funktionsförmåga, symtom på ångest och depression, biomarkörer för stress och inflammation, sömn och kognition hos äldre personer med långvarig sjukdom. Vi kommer även att mäta sjukvårdskonsumtion, upplevelser av och tillfredställelse med yogan och tekniken. Utvärderingen sker genom att 150 äldre personer över 65 år med långvarig sjukdom rekryteras från tre sjukhus (ett universitetssjukhus och två länssjukhus) och lottas till en intervention med medicinsk yoga i hemmet med teknikstöd eller ett individualiserat träningsprogram. Teleyogan kommer att omfatta yogasessioner i grupp, 2 gånger/vecka som leds av en certifierad yogainstruktör via weblänk till en surfplatta kombinerat med en app i surfplattan med instruktioner hur man genomför medicinsk yoga på egen hand mellan de instruktörsledda yogasessionerna. Data om livskvalitet, funktionsförmåga, ångest och depression, biomarkörer, sömn och kognition kommer att samlas in vid baslinjemätning, efter 3 och 6 månader. Denna studie tar ett nytt grepp på rehabilitering av långvarigt sjuka äldre genom att utvärdera en medicinsk teleyoga på distans i hemmet.

Med vänlig hälsning

Anna

Nursing research at Heart Failure congress 2018 in Vienna, Austria

The 26th-29th of May I went to the Heart Failure Congress 2018, Including the World Congress on Acute Heart Failure in Vienna, Austria. The congress had over 5750 participants from over 80 countries. To see all the tweets during this congress, search for the #HeartFailure2018.

This year there was a lot of interesting talks and we would like to highlight the presentations given by members of the CESAR group.

Dr Tiny Jaarsma gave a talk about sex and heart disease. Pointing out that heart disease can lead to sexual problems. Furthermore, patients think that sexual counseling should be part of cardiac rehabilitation, which is often not a subject that was discussed. Patients prefer to receive written material and/or individual discussions. We should remember, according to Dr. Anna Strömberg, that patients with a LVAD are going through a transition in life and that there are psychosocial challenges in patients with an LVAD. See her take-home messages in the pictures below.

take home m

In the late breaking trials, the results of the HF-Wii study were discussed, which is a study conducted by Tiny Jaarsma, Anna Strömberg, Jan Mårtensson and Leonie Klompstra. This study proves that exergaming (being physical active through video gaming) positively influences exercise capacity and wellbeing of patients with heart failure. To see an interview about this study during the interview, please click here. In a poster presenting a sub-study of the HF-Wii showed that exergaming could also be feasible for patients with a LVAD, and patients especially liked to exergame with their grandchildren.

conclusions

There was also a great session on alternative ways to be physically active in patients with heart failure. One of the alternative ways was presented by Anna Strömberg: medi-yoga. To read more about medi-yoga click here.

exerg

 

Another alternative way, again using exergaming, was presented by Tiny Jaarsma.

 

 

 

 

leonie

 

Leonie had two poster presentations, together with Tiny Jaarsma & Anna Strömberg, on the importance of objective measurements to assess physical activity.

 

 

Picture by @Angie_Durante89


tiny

Hanna Allemann also presented a poster. This study focus on perceived social support and hannahealth related quality of life in persons with heart failure and implantable cardioverter defibrillator (ICD).

 

 

 

 

 

Please safe the date for next years’ Heart Failure congress 2019, 25-28th of May 2019 in Athens, Greece.

hol

 

Hanna Allemann & Leonie Klompstra

 

 

 

Self-care day in Rome 2018

 

sc rome

Tiny Jaarsma and Anna Strömberg went to Rome on the 14 and 15 May to share knowledge and experience on using the Middle Range Theory of Self-care in Chronic Illness during a conference organized by the Nursing center of excellence in Rome. A lot of researchers and students from Tor Vergata University in Rome presented their impressive work using this theory in patients with cardiac disease but also other chronic disease such as COPD and diabetes. It seems that the theory is very valuable to structure research and use in patient care and instrument development.


International guests at Linköping University to celebrate the HF-Wii study

logo wii

 

15 and 16 of April 2018 international researchers had a 2-day meeting at LiU’s campus Norrköping.

WWIITiny Jaarsma, Anna Strömberg and Leonie Klompstra welcoming all.

After an intense collaboration of 5 years with colleagues from 10 centers that included patients in the HF-Wii study we organized 2 days of presentations, discussions and practical instruction. Our research colleagues from Sweden (Linköping, Norrköping, Nyköping, Jönköping and Stockholm) and colleagues from Italy, Israel, Germany, Netherlands and USA collected data from in total 605 patients in 10 centers.

åhörare 2

Scientific discussions included intention to treat and per protocol analysis and optimal dissemination.  We also presented first outcomes (positive results of playing an exergames), experiences of patients and planned analysis and sub-studies.

A visit to the local patient organization to learn on implementation of the results completed 2 inspiring days.

gruppbild

Part of the international research group at ’Föreningen HjärtLung Norrköping.

To read more about the study please visit our website: www.hf-wii.com or follow us on twitter @HFWii

 

 

 

 

Workshop on Rehabilitation and Long-Term Management of Heart Failure Patients

Dear all,

The 21st – 22nd of March I was invited to be speaker for the Heart Failure Association Training Workshop on Rehabilitation and Long-Term Management of Heart Failure Patients in Pisa Italy, a course of the European Society of Cardiology. This was such an honour, especially because I attended this course myself as a PhD student four years ago.

CCNAP

The first day of the workshop we learned a lot about the guidelines for rehabilitation and prevention and there were presentations on Acute setting/post-acute setting – first steps in initializing cardiac rehabilitation. Additionally, there were two live sessions from the cardiac clinic in the hospital of Pisa (Fondazione Toscana Gabriele Monasterio per la Ricerca Medica e di Sanità Pubblica). One live demonstration on early mobilization and physical reconditioning in acute setting and the second on cardiopulmonary exercise testing.

In the evening we visit the Acient Camposanto in Piazza dei Miracoli and had dinner with all the participants and speakers in the course. A perfect ending of an excellent first day.

piza

piza2

 

 

 

 

The second day the presentations were on phase two in rehabilitation, emerging scenarios in heart failure: case presentations and multidisciplinary approach in rehabilitation. I gave a case presentation on tele-rehabilitation and Wii gaming and a presentation on how to deal with vocational, sex and other crucial items in rehabilitation. On sexual counseling in rehabilitation I wrote a blog for the early career blogging of the American Heart Association. There is a very nice online web-seminar of sexual counseling in cardiac patients on the website of the European Society of Cardiology, if you would like to learn more about this subject.

 

Leonie Klompstra

 

Post-doc collaboration

ghassan

Ghassan Mourad has a collaboration with the research group “Emergency, Cardiovascular and Critical Care Research (ECCCR) Group” led by Professor Tom Quinn at Kingston and St George’s Joint Faculty of Health, Social Care and Education in London. The ECCCR group was launched at the 28th February 2018 and Ghassan Mourad was present at the launch to present his RCT “Patient and societal benefits of guided internet-delivered cognitive behaviour therapy for patients with non-cardiac chest pain”.

The 5th national Swedish conference in Palliative Care

palliativ konferensThe 5th national Swedish conference in Palliative Care was held in Stockholm 21-22 March 2018. The conference is of interest for all health care professionals working in palliative care, regardless of context of care and disease. The theme of the conference this year was ”the palliative approach”.

ML, LH

Two Cesar members presented at the conference. Dr Maria Liljeroos had an oral presentation entitled To live with a person with heart failure, the time before and after the death.

PhD student Lisa Hjelmfors had a poster presentation with the title: Using co-design to poster LHdevelop an intervention to improve communication about prognosis and end-of-life issues in heart failure care. The poster described how co-design was used as a method to develop communication tools, and invited the users: patients, family members and health care professionals to be constructive participants in both the design process and in the testing of the intervention. A Question Prompt List for patients and family members and a communication course for health care professionals were developed and tested, and the communication tools can be valuable in improving communication in HF care about prognosis and end-of-life care.

 

The next national Swedish Palliative Care conference will be held in 2020.